Today we had two appointments for Joshua. It was a very long, very emotional day but we wanted to share what we now know. First of all Joshua has been super active the last few days. Now not only am I feeling him at night but throughout the day. It is truly amazing to feel him move inside of me. During our first appointment with my regular OB the nurse commented on how active Joshua was and how strong his heart rate was. (she hadn’t read our file and had no idea what sweet Joshua is up against and it was nice to hear her say something positive) When we saw our specialist, Dr. Adam, she did an ultrasound and read the results of the tests we had gone through a few weeks back. From the MRI she said that Joshua has Holoprosencephaly which means an incomplete or absent division of the embryonic forebrain (prosencephalon) into distinct lateral cerebral hemispheres. She said this is most commonly found in Trisomy 13 so now she is leaning more towards Trisomy 13 than 18 for Joshua. She said that most Trisomy 13 babies have more bizarre or abnormal physical features, which Joshua does not seem to have but that every case is different. She talked to us a lot about where we go from here and once again STRONGLY recommended doing an amino. We told her we might consider it later in the pregnancy when we know that Joshua is viable. She said we could do it as late as 33 or 34 weeks. Dr. Adam was very pleased with Joshua’s growth since last month. He is still measuring 2 weeks behind but he was 2 weeks behind last month so he grew the appropriate amount. On the way home Nathan and I were rejoicing in this because as long as he continues to grow our chances of carrying him to term are possible. Assuming I carry him to term she will do a c-section the week of April 16th. The best part of today though was seeing Joshua on the ultrasound. He is absolutely beautiful! One of the benefits of seeing so many doctors is having so many opportunities to see our precious baby. Thank you for all the prayers today and we ask for your continued prayers for a miracle.
“For with God nothing will be impossible.”
Luke 1:37
Beautiful! Continuing the prayers for him and your family!! Just mentioned the same scripture today while praying for sweet Joshua... "For with God nothing will be impossible!"
ReplyDeleteHi SarahBeth!
ReplyDeleteI saw your post a few weeks ago...your family is in Collin's and my prayers.
I was actually spending time in the Neonatal ICU when I saw your post and spoke to the physician I was working with(whom I trust and respect) about amnios and your situation. I would love to talk with you if you'd like. Either way, still sending prayers!
Elyse
hi babe. it's been over a week since we met and you've not left my thoughts or prayers. Every first saturday of the month is a pro-life mass at our parish. And the gospel reading for saturday was John2:1-11. My Cana's scripture. No coincidences as I offer up my days and nights for you and Joshua. Continuing to walk with you, no matter the road. love you guys. United in faith, suffering and joy!
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